Private or Not Private??? That is the question....

I dont really know what sparked this but I have really been debating going private. I will start to gather your email addresses for when I switch over. I think the main reason is for all the personal and medical things I put on I just read some stuff on the internet and I got a little disturbed!!!! Anywho, I love ya all and just let me know if you would like to continue to follow our family. Thanks and hope to hear from you soon.

Oh and if any of you have any PRO's or CON's about going private (why you are private or why you are NOT then I would LOVE to hear them)

Have a Great Day.
-Les

Macer's Update....

Well today was one of the longest days we have had in a long time, even more so for Mace. We woke up at 3:30am and had to get ready to head to Primarys (we had to check in at 6:30). So we checking in for MRI number 2. Let me just say it was nice to kinda know what to expect this time. She had been doing breathing treatments since Friday (yes while we were camping, Not to mention the Antibiotic for her ear infection) Anyway so they had this lady come listen to her lungs to see if it was still a go for her to be sedated to have the MRI done. Thank goodness she sounded okay, if we hadn't started the Treatments when we did she probably wouldn't have been able to do the test.(She has a great Ped!! Thanks Dr.O'Very) Anyway so here she is before going in to get sedated
Dont mind me it was early....

I think the hardest part is NOT when they put the IV in but when they administer the sedation med. Its like you have just sucked the life right out of her right before your eyes. It just gives me this feeling that is so hard to explain. But they are so good to her when they take her from me.



Then we were off to the recovery room. Her nurse Kenzie was WONDERFUL she did so great with Mace, it just reminds me how having a good nurse makes the visit that much better.



And for those of you who are wondering...Yes Dan did end up coming. He couldn't watch the IV being placed or the labs or anything the inflicted any sort of pain but yes he came!!

When she woke up she was one thirsty little lady. It was so funny when she got done with a couple of swallows she would stop and make this big sigh "ahhhhhhhhhhh" it was so sweet



After her MRI we had a little break before we had to go back to see Dr. Swoboda. Then we headed back around 1:00ish for that appt. It went okay, I was kinda hoping for a little more but I guess ya take what ya get. She started out by asking a ton of questions about Mace since the last visit. Then they did some evals on her, and some other random things.



Then we finally started talking about her MRI results. She said that Herself and Dr. Bale both looked at them and it looked better then the one 6months ago, however it still did not look good. She still has the dark spot on the left that is abnormal. So Dr. Swoboda is now thinking that this all has to do with her Lysosomes, and something to do Metabolically (however you spell that) I dont know what a lot of that means but she did some more test that were sent out to The University of Alabama, that we should get the results back in two weeks. (once again we wait!!) Then we will go back and see her again in two months from today. So there ya have it more questions, however it is nice to keep narrowing it down so hopefully soon we will know what is going on and how to help her. Mace is the most amazing little lady I have ever met. She is truly so amazing, so patient and such an inspiration to me and many people that know her. I cant even imagine going through the things she has gone through being so tiny and always being in such good spirits after being woke up at 3:30 am and driving to Primarys going through all that, and not even getting a real nap AND not even getting home til 7:00pm that night. I mean really how amazing is she?????

WOW!! It has been a long time!

Okay so it has been a while since my last post (thanks for reminding me Ladies!!) So lets just start with Jada had her special Day at Teacher Tana's and LOVED every minute of it. They did the whole day around her. She got to make a poster about herself, got to pick who rolled the mat up with her and all this other stuff that just made her DAY. I would post pics but I video'd it and I cant figure out how you post a video. So we will move right along to: Well we went to Richmonds Black and White Days at Grandma Kells. It was GREAT!!




Thanks for coming with us Brimhalls!!
Next on the list is the Memorial Weekend. We went camping up to Lava with Brimhalls, and Nonie and Andy, and Grandpa Dunkley joined us Sunday. It was a little cold but fun. We played games, tye dyed shirts, did a safari scavanger hunt, and Kris made some Ice Cream (okay not really but it was a good try Kris)

Nonie, Jayce and Macer enjoying the Sunrise

Mace and her FURRY friend. She loved this little caterpillar. It lasted a while until she squished his little guts right out!!! (She is not scared of anything)




Here we are tye dying our shirts (That got thrown away so now we HAVE to do it again)



Grandpa Dunkley, and the Girls seem to be having a good time!!


Kris and Dust, Wow you guys should open an Ice Cream Parlor!!!!(yeah that is the amount of Ice Cream she made for about a dozen people!!)

My personality color

What's Your True Color?

My Result: Red

Your color is red, the color of racy sportscars, blushing cheeks, and luscious roses. Red symbolizes passion, romance, and love. So, since you're ruled by red, you probably trust your feelings more than your brain and tend to act spontaneously. If you see something you want, you go for it without thinking twice — impulsive is your middle name. You don't wait around for people to make decisions, either; you dive right in. Quite the romantic, you pay close attention to your emotions. In fact, if your heart isn't in what you're doing, you won't be satisfied. Of course, even when you do pour all your energy into the projects you tackle, your impetuous nature means your passions can shift as frequently as the wind. That's why some reds have trouble with commitment. Our advice? Next time you're feeling fickle, think before you act, if possible. You might be surprised at the results. Overall, though, it's great to be red. No one lives life more completely than you do.

What are you?
http://web.tickle.com/jumpto?test=colorogt&c=50652

A day at Auntie Em's

So the other day we headed to Weston to Stuart and Em's to study for our final(yeah!!!) anyway and the kids had so much fun playing outside. Tate and Jada took pretty good care of Mace as usual.

It was so fun to see the kids having such a good time in their Christmas present.
Jada still needs some practice driving, but Tate was patient with the girls and gave them a free driving lesson.... What a pro!


After we got done inside Mace was ready for a well deserved nap. Oh isn't she so sweet

Shortly after she woke up from her nap she found a new friend. It was sooo funny to see her with this robot. The first time I pushed the button for it to turn on she was so frightened. However to my surprise that soon changed and it turned into her Dance partner. It was hilarious. She would push the button and just dance and dance making the robot move his little arms with hers. It was great!! I video'd it but I can't figure out how to put it on here!! So pictures will have to do. Notice in the one pic she even has her hand on his shoulder, dancing.

And the Winners ARE...

You got it the ONLY Three that decieded to play....
Jen
Steph
Megan

So guys send your address to my email and I will get your prize out the mail and to you! Bennettgal28@msn.com